Wednesday, May 28, 2008
Tuesday, May 27, 2008
Wednesday, May 21, 2008
Friday, May 16, 2008
Hermansky Pudlak Syndrome
Well I have just got off the phone to a great team in New York, I am going to have my kids tested for HPS.
My son has had ill health for the last couple of years and now my daughter has been having nosebleeds and her legs are black and blue, she also has lots of little skin breakouts that keep bleeding. Our family doctor ran some bloodwork for clotting and haemophillia screening which came back normal which we were expecting.
I will blog a little more often- I know I'm dreadful for updating my blog but I will trya
My son has had ill health for the last couple of years and now my daughter has been having nosebleeds and her legs are black and blue, she also has lots of little skin breakouts that keep bleeding. Our family doctor ran some bloodwork for clotting and haemophillia screening which came back normal which we were expecting.
I will blog a little more often- I know I'm dreadful for updating my blog but I will trya
Sunday, May 11, 2008
Greetings Cards
If anyone needs greetings cards made up in a large print www.cards-to-remember.com can do that for you, email at info@cards-to-remember.com for further information
Thursday, May 8, 2008
Moorfields
Just wondering if anyone else has experienced the new Children's wing at Moorfields.
Considering it is 'THE' eye hospital in London, I was amazed at the design. The waiting room has a floor to ceiling full width glass wall!!!!! There is a horrendous thing in the middle called the pod which is shaped like an onion and has a little play table running around it's perimeter- of course a VI child cannot see that this bulb shaped monstrosity actually bulges out at head height when they are playing at the table and yes my daughter did bang her head. The children can play inside the pod, which has a slope at the entrance (Yes a slope in VI children's play area). There is a cramped creativity corner along the glass wall with play leader with supply of colouring pages but they are only on bright white paper and the pictures are not well defined and to top it all a portable TV with 14" screen- did I mention this was a specialist eye clinic waiting room???
I am flabbergasted that with the money spent on this building, no thought was given to the clientele. Luckily on the 2 occasions we have been up there it has been pouring with rain, dread taking my extremely photophobic DD up there on a sunny day, she will be sooo miserable
Considering it is 'THE' eye hospital in London, I was amazed at the design. The waiting room has a floor to ceiling full width glass wall!!!!! There is a horrendous thing in the middle called the pod which is shaped like an onion and has a little play table running around it's perimeter- of course a VI child cannot see that this bulb shaped monstrosity actually bulges out at head height when they are playing at the table and yes my daughter did bang her head. The children can play inside the pod, which has a slope at the entrance (Yes a slope in VI children's play area). There is a cramped creativity corner along the glass wall with play leader with supply of colouring pages but they are only on bright white paper and the pictures are not well defined and to top it all a portable TV with 14" screen- did I mention this was a specialist eye clinic waiting room???
I am flabbergasted that with the money spent on this building, no thought was given to the clientele. Luckily on the 2 occasions we have been up there it has been pouring with rain, dread taking my extremely photophobic DD up there on a sunny day, she will be sooo miserable
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