Friday, May 16, 2008

Hermansky Pudlak Syndrome

Well I have just got off the phone to a great team in New York, I am going to have my kids tested for HPS.

My son has had ill health for the last couple of years and now my daughter has been having nosebleeds and her legs are black and blue, she also has lots of little skin breakouts that keep bleeding. Our family doctor ran some bloodwork for clotting and haemophillia screening which came back normal which we were expecting.
I will blog a little more often- I know I'm dreadful for updating my blog but I will trya

2 comments:

Heather Kirkwood said...

Hello there,
I don't know if you have your results back yet, but I just saw your post (came up on one of my internet searches) and I wanted to say hello and I'm here if you need any help or have any questions. My name is Heather Kirkwood and I'm the vice president of the HPS Network.

Cards to Remember said...

Thanks Heather,I am sooo impressed with the HPS network.
The bloods are next Tues to arrive in MN Weds 28th, I will have LOTS of questions if they show HPS. I forgot to ask how long we have to wait for results though.