In time I am hoping to add other people’s experiences so that there is a broader view for future parents starting out on the albinism path.
For more information on albinism click on the links:
UK – www.albinism.org.uk
USA – www.albinism.org
Both links are support groups explaining the genetics, types and effects of albinism as well as offering discussion forums
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A Parents Perspective on Albinism Matters
Natural Beauty
Welcome
Welcome to Albinism Matters – Albinism information with a difference.
There are many great websites with brilliant information on albinism but I realised that whilst most talked about albinism itself and maybe the necessity of wearing glasses and sun protection there was limited information on the day to day strategies that many of us include when caring for children with albinism – you know the little things that matter.
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